Practical Guide to ALS - Logo

Guide

patient lifts
Equipment

Patient Lifts

We used two primary kinds of patient lifts for our son: floor-based and ceiling-based. I also include a few others that we didn’t use.

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head and neck support
Equipment

Head and Neck Support

This guide entry discusses all the issues with head drop, along with the equipment we bought or acquired and the equipment I made at home.

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doctors
Medical

ALS and the Medical Profession

From our experience taking care of our son, professionals saw him only during an office visit or home visit, so they had just 15-minute snapshots separated by weeks and months.

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patient advocates
Legal

Patient Advocates

When our son, Jeremy, had to stop working and go on disability, his employer provided a patient advocate for him. She was a godsend.

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Causes of ALS
General

Thoughts on Causes of ALS

ALS researchers and doctors have listed numerous possible causes of ALS: heredity, age, gender, genetics, extreme athletics, smoking, environmental toxin exposure, military service, stress, impacts.

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shower
Equipment

Shower Chairs

As our son’s condition worsened, we tried a number of shower chairs. Here are the pros and cons of several types.

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