Your online ALS resource
Welcome to the Practical Guide to ALS.
ALS patients and caregivers suffer due to the lack of a go-to website with everything in one place. Here, you will find in-depth critiques and reviews about equipment and physical and medical treatments to help you stay informed. You will also find discussions on various legal issues that often come up for patients and caregivers.
Our son, Jeremy, was diagnosed with ALS in January 2018, and he passed away almost four years later.
I’ve created this guide based on my experience as a parent and full-time caregiver to an ALS sufferer. This is my contribution to the ALS community. I hope that it offers some support and answers your questions.
Note: In late 2026 I discovered that numerous government links and websites that I have cited in my articles on this website have been altered since the 2024 Presidential election, as the Feds alter or delete information to fit their political, unscientific agenda. I am trying to update my articles with alternative links whenever possible, and I will avoid US government links.
FRED SCHREIBER
1979–2021
Dedicated to Jeremy Schreiber
Our son, Jeremy, lived in New York City and loved all kinds of physical activities, like snowboarding, skiing, running, rock-climbing, and especially sailing. In the spring of 2017, he developed what he thought were painful shin splints and ended up using crutches because he kept falling.
No one could figure out what was wrong, so my wife and I took him to the Mayo Clinic in January 2018. That week, he received the diagnosis of ALS (amyotrophic lateral sclerosis). A death sentence. The usual cause of death is respiratory failure within two to five years after diagnosis.
Jeremy, a successful salesman for a number of big-name pharma companies, began losing the ability to speak, walk, go to the toilet, bathe, and dress himself, so he moved into our house in June 2018.
Learn more about Jeremy’s journey and the Practical Guide to ALS.
How to use this guide
The Practical Guide to ALS is made up of articles divided into four categories: Equipment, General, Legal, and Medical.
You can search under each category or scan the topics on the main page.
Check back often for updates and new articles.
Please contact me if you have any questions or comments.
Praise for The Guide to ALS